Society of Critical Care Medicine | SCCM THRIVE: Online resource for post-ICU-discharge |
| https://www.sccm.org/MyICUCare/Resources/Discharge-From-the-ICU |
“After PICU” | Website: Comprehensive resources for children and families following a critical illness |
| www.afterpicu.com |
American Academy of Pediatrics | Website: Dozens of individual resources for parents and families with search functionality |
| www.aap.org |
American Thoracic Society | Website with multilingual resource for critical illnesses and interventions |
| https://www.thoracic.org/patients/patient-resources/topic-specific/critical-illness.php |
American Thoracic Society | Website with multilingual resources dedicated to symptoms, diagnosis, and treatment of COVID-19 |
| https://www.thoracic.org/patients/patient-resources/covid-19.php |
American Thoracic Society | Brochure to educate patients and families on post-intensive care syndrome |
| https://www.thoracic.org/patients/patient-resources/resources/post-intensive-care-syndrome.pdf |
American Thoracic Society | Managing the ICU Experience: A Proactive Guide for Patients and Families |
| https://www.thoracic.org/patients/patient-resources/managing-the-icu-experience/ |
Atlantic Health System | After the ICU: Resources and information to help you and your family thrive after a critical illness |
| https://www.atlantichealth.org/content/dam/atlantichealth-v2/trauma-and-critical-care/MMC-42445-21-Thrive%20After%20the%20ICU%20(1).pdf |
Certification Board for Music Therapists | Ensures access to safe, effective music therapy services |
| https://www.cbmt.org |
Critical Care Recovery | Online resource with links to multiple opportunities including survivor stories and psychosocial educational material |
| https://www.criticalcarerecovery.com/ |
Every Deep-Drawn Breath | A critical care doctor’s perspective on healing, recovery, and transforming medicine in the ICU. Proceeds benefit the CIBS Center Endowment for Survivorship |
| https://www.icudelirium.org/every-deep-drawn-breath |
Health Talk | HealthTalk creates content by having professional researchers interview and share the stories of real people dealing with health concerns |
| www.healthtalk.org |
ICUsteps | ICUsteps supports patients and relatives affected by critical illness. They promote recognition of physical and psychological consequences of critical illness and encourage research into treatment and prevention |
| www.icusteps.org |
ICUDelirium | A resource for patients and families experiencing post-intensive care symptoms including the results of delirium |
| https://www.icudelirium.org/patients-and-families/overview |
Johns Hopkins Medicine | Breathing Exercises after Critical Illness (including COVID-19) |
| https://www.hopkinsmedicine.org/health/conditions-and-diseases/coronavirus/coronavirus-recovery-breathing-exercises |
Johns Hopkins Medicine | Bouncing Back from COVID-19; Your Guide to Restoring Movement |
| https://www.hopkinsmedicine.org/physical_medicine_rehabilitation/coronavirus-rehabilitation/_files/impact-of-covid-patient-recovery.pdf |
Kaiser Permanente | A Family Guide to the ICU: a printable resource for families experiencing critical illness |
| https://mydoctor.kaiserpermanente.org/ncal/Images/Family%20Guide%20to%20ICU_tcm75-854750.pdf |
Neurocritical Care Society | Family and Patient Resource Page for neurocritical care units |
| https://www.neurocriticalcare.org/resources/family-patient-resources |
Neurocritical Care Society | Stories of Hope: Online Family Advocacy Resource including stories from real patients and care teams covering multiple topics, including recovery, advocacy, and more |
| https://currents.neurocriticalcare.org/stories-of-hope |
Psychology Tools | Free Guide to Critical Illness, Intensive Care, and Post-Traumatic Stress Disorder; Available in 13 languages |
| https://www.psychologytools.com/articles/free-guide-to-critical-illness-intensive-care-and-post-traumatic-stress-disorder-ptsd/ |
Society of Critical Care Medicine | SCCM THRIVE—Post-intensive care syndrome (PICS) and the Family, an online resource |
| https://www.sccm.org/MyICUCare/Resources/Pediatric-Post-Intensive-Care-Syndrome-and-the-Fam |
Society of Critical Care Medicine | SCCM: THRIVE—Redefining Recovery: Supplemental to THRIVE to educate survivors |
| https://www.sccm.org/MyICUCare/Resources/THRIVE-Redefining-Recovery |
Substance Abuse and Mental Health Services Administration | Online resource providing guidance to mental health resources and the right questions to ask with respect to mental health |
| https://ncsacw.acf.hhs.gov/userfiles/files/SAMHSA_Trauma.pdf |
University of Chicago Medicine Comer Children’s Hospital | PICU Passport; an introduction to the ins and outs of being a patient and family in a pediatric intensive care unit. Includes a glossary of terms used in and outside of the ICU |
| https://www.sccm.org/getattachment/1723b336-1176-4f40-8766-0148c207114b/PICU-Passport |